Thank you so much @kayrun.
I figured I’d give an update on the whole medical situation here. Thank you to everyone who was kind enough to send me happy mail and/or include me in their prayers, positive thoughts, etc.
My husband has been home since August 13th and is making steady and quick progress. He no longer needs any mobility equipment, and he returned to work full-time this week from home. Next week he will work 1 day in the office, and then gradually return to his hybrid position (2 days from home and 3 in the office), in consultation with the return to work specialist. He still needs quite a bit more rest than he ever did, and he is definitely not ready to go back to his level of activity from before his infection. But he will get there.
While my husband is almost back to his old self, I have been struggling with my asthma, which had been mild my entire life, but took a turn for the very worse in the beginning of September.
Content Advisory: child abuse and medical neglect
Summary
I have been struggling with an asthma flare-up that began at the beginning of September and has not yet subsided. I have had a visit to urgent care, one to an after-hours clinic, and two ER visits this month alone.
The last ER visit did not go well at all. Read: I spent 12 hours in an ER and received no treatment for my asthma exacerbation. They did bloodwork and imaging… but no actual treatment for the fact I cannot speak, laugh, or simply walk across the room without triggering asthma symptoms. My family doctor actually sent me to the ER from his office because of how much difficulty I was having just speaking with him. And I received no treatment. Two separate doctors treated me as if I was in the ER for a simple cough. One actually stated “it’s unusual to get asthma in your 40s.”
I have had asthma my entire life, but it was not formally diagnosed until 2012. My lungs do not ever make a wheezing sound, even when I am having severe difficulty breathing. My asthma attacks involve non-stop coughing, chest tightness, exhaustion, confusion, but never wheezing. And so I am not taken seriously, despite all my asthma medications and diagnosis being on my medical chart.
Being basically told by two separate doctors that I don’t have asthma was very triggering for me, because I was punished for coughing at night as a child. I learned after I became an adult that nighttime dry coughing is one of the main s ymptoms of childhood asthma. But because I didn’t wheeze, 1 doctor told my father and stepmother that I just wanted attention. And they went with that, punishing me for coughing at night for over 10 years.
Being ignored by these doctors and being sent home without treatment felt like being punished all over again, and I’m still trying to recover from the emotional stress, while I’m still having a hard time doing anything because everything I do triggers asthma symptoms….
I am oversharing, but I just wanted to let you know why I haven’t been around.
I am trying to return to my activities as best I can… but everything I do triggers asthma symptoms, and I am struggling emotionally as well.
I hope that I will have enough energy and mind space to return to happy mail (and writing in general) soon…
For now I ask you to continue to keep me in your prayers, positive thoughts, etc.
Thank you all for being so kind. You’re a huge part of my support network, even if you don’t know it.
Also, I know that the summary above probably belongs in the chronic illness thread, so if anyone does not like it being here, please do let me know, and I will delete it.
Thank you.